30 things about my invisible illness

Here’s the deal: Paste the questionnaire below into the comment section at the bottom of this blog page and then complete your answers. Because I’m bored. :]

30 Things About My Invisible Illness You May Not Know

1. The illness I live with: Chronic Lyme Disease
2. I was diagnosed with it in the year: 2014
3. But I had symptoms since: 2000
4. The biggest adjustment I’ve had to make is: Changing my diet. That is NOT an easy one for me!
5. Most people assume: That being ill doesn’t effect my life very much, because it doesn’t LOOK like it does, but it doessss.
6. The hardest part about mornings are: Getting out of bed. Walking. You know, those nonessential things.
7. My favorite medical TV show is: Grey’s Anatomy (if that counts as a medical TV show lol)
8. A gadget I couldn’t live without is: My iphone!
9. The hardest part about nights are: the pain. Pain pain pain. Therefore the falling asleep too.
10. Each day I take _+/- 41_ pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: Will consider them if they pass “the logic test”, and have found some to be extremely helpful.
12. If I had to choose between an invisible illness or visible I would choose: I don’t know. I want to say visible, but there are some pros to the invisibility of lyme.
13. Regarding working and career: working is hard as @#$%, and I wish I had a career. :/
14. People would be surprised to know: That I actually don’t hate being ill, it’s part of who I am, and I actually can’t say that given the chance I would change it.
15. The hardest thing to accept about my new reality has been: That I may actually not have fibromyalgia and all of the other conditions that I have thought I had for the last 12+ years.
16. Something I never thought I could do with my illness that I did was: Graduate from college.
17. The commercials about my illness: What commercials? There should really be commercials.
18. Something I really miss doing since I was diagnosed is: Eating, and not thinking about what I was eating, just enjoying it.
19. It was really hard to have to give up: Eating bagels. I looooooove bagels.
20. A new hobby I have taken up since my diagnosis is: None at the moment, but I’d like to take up quilting. :]
21. If I could have one day of feeling normal again I would: NOT take it. That would be some kind of crazy cruel and unusual punishment.
22. My illness has taught me: To never judge someone, you never know what battle they are facing. That perfectly healthy looking young person parked in the handicapped parking space may in fact be battling a horrible invisible disease.
23. Want to know a secret? One thing people say that gets under my skin is:  “You’re not THAT sick”.  Never ever ever compare levels of sickness. Illness affects everyone differently, and while someone may look less sick than someone else, that does not mean they are less sick. Being sick is an awful thing to deal with, regardless of what the illness is or the severity of it; every sick person is fighting a daily battle to survive, and no one should ever downplay that fact.
24. But I love it when people: Call/text/message me to ask how I’m feeling today. It means the world to me to know that someone is concerned and checking up on me and that I can tell them honestly how I’m feeling.
25. My favorite motto, scripture, quote that gets me through tough times is: “This too shall pass”
26. When someone is diagnosed I’d like to tell them: EDUCATE YOURSELF NOW! Be your own best advocate, because no one else is going to do it for you.
27. Something that has surprised me about living with an illness is: I don’t know, I don’t remember what it’s like to not live with an illness.
28. The nicest thing someone did for me when I wasn’t feeling well was:  Keep me company. I hate to be alone when I don’t feel well, for both emotional and practical reasons (but mostly emotional). So just simply coming over and watching a movie with me, to just BE there, is the best thing anyone could ever do for me.
29. I’m involved with Invisible Illness Week because: I don’t think it’s even Invisible Illness Week anymore lol.
30. The fact that you read this list makes me feel: Like I’m either really special or you’re REALLY bored. 😛

– See more at: http://lymedisease.org/news/touchedbylyme/187.html#sthash.906UYiHM.JbrIkxpH.dpuf

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