The positive side of lyme disease…

Last weekend I attended a wonderful event in Jacksonville called Lyme In The South Music Fest.

I felt really awful…like really REALLY awful. I was in a lot of pain, and was very weak and shaky, so much so that I could barely walk! But it didn’t even matter, I had such an amazing time! I met lovely friends, some of whom I had only known online until this event; I listened to incredible music, some of which was played by amazing musicians who have battled lyme disease and now use their abilities to raise awareness; I heard wonderful speeches given by a well known and respected LLMD in the state, as well as a researcher at a local university who is doing amazing work to spread (and prove!) the truth about lyme disease in the south; and I enjoyed a beautiful afternoon/evening on the St. Johns River.

Here are a couple of pictures of the event…

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Just a few days after this event, there was a protest at the headquarters of the IDSA (Infectious Diseases Society of America) located in Arlington, VA. For two days protestors stood outside the building, called, emailed, etc. The majority of these protestors, were sick people. People who have suffered, and ARE suffering, and yet found the energy to travel, stand outside, make phone calls etc.

 

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I am constantly amazed at the lyme community; I am fairly newly diagnosed, and haven’t been around these people for that long, but it is absolutely incredible to me the amount of love, caring and friendship that exists, often for total strangers. I have been around many online support groups for various diseases; fibromyalgia, lupus, chronic pain, candida, etc. and no where have I found the kind of support I have found in lyme groups over the last few months.

A friend of mine said how I feel perfectly when she said:

“We love together, cry together, laugh together, and most importantly, we fight the injustices of the medical community in this country for better diagnostics and treatment. To each and every one of you I held and embraced, and to those I did not, I love you with a full heart.”

(All pictures were taken by personal friends of mine)

1 Comment

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One response to “The positive side of lyme disease…

  1. Hi Addie Marie 😀 I am so pleased that you had a great day. You and your friends look so happy together. ❤

    Like

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