Monthly Archives: March 2015

Today is a big day…

Today is a special day…I know it doesn’t seem like it, but it is. “It’s just March 27th, what’s so special about that?” — I know that’s what you’re asking yourselves. Well here it is…

Its my Lyme-a-versary. Exactly one year ago today I was diagnosed with Lyme disease. Exactly one year ago today my life changed completely; all at once I had a newfound hope, but in the same moment I took the first step on a very long, very hard journey. So many times in the last year I have wanted to quit, I’ve wanted to give up and go back to “fibromyalgia”…at least that didn’t involve purposefully making myself sicker, but I didn’t and I’m so glad. 🙂

365 days

3 heart surgeries (1 pacemaker implantation and 2 ablations)

3 picc lines

12 LLMD appointments

334 IVs

5 ER visits

4 ultrasounds

4 MRIs

7 x-rays

1 CT scan

7 different antibiotics, 2 antifungals, 1 antiviral and 1 antiparasitic

44 PT/myofascial release sessions

7 Chiropractic/acupuncture sessions

12 microcurrent sessions and 1 rife session

12093809573459 supplements

Countless hours of research and thousands of dollars…

later I have to say I’m finally seeing some improvement! I’ve had an awesome few weeks, which is really nice because I was needing a reminder of what I was fighting for. I needed just a little proof that it was possible for me to get better, and I got it.

In fact, I’ve been feeling SO good that I walked/ran a 5K on Saturday!

(Picture for proof 🙂 )

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Yes, that is the wonderful boyfriend I mentioned in a previous post 🙂 ❤ This is The Color Run, basically a 5K where the point is to get as dirty as possible with different colored paint. You fling it on each other and there are volunteers there to fling it on you as you run as well. It was so much fun, and an incredible experience to be able to check that off my bucket list. Of course I intend to do it again next year and run the entire thing, but even if that never happens now I can say I did it once!

So in honor of my Lyme-a-versary I took the Lyme Disease Challenge today. This is a grassroots campaign to raise awareness of lyme disease and the desperate need for research and accurate testing methods.

Lyme disease challenge 2

Did you know that 300,000 people are infected with lyme disease each year? That’s more than hepatitis, HIV, colon cancer AND breast cancer! Did you also know that there is no reliable test to diagnose lyme, and that less than 50% of people develop the classic “bulls eye rash” or remember a tick bite? This leads to a delay in diagnosis, often for many many years, by which time many patients are severely disabled. Lyme can imitate many common diagnosis’ such as fibromyalgia, chronic fatigue syndrome, MS, ALS, Alzheimers, Parkinsons and autism leading to improper and ineffective treatments for these conditions, meanwhile the patients just get sicker. Please, educate yourself and your loved ones, this is a terrible disease and we need to get the word out!

Now I challenge all of you readers (especially you Ralph!) to participate in the challenge as well! Picture or it didn’t happen! 🙂

Are you in? Great! You have 48 hours to follow the three easy steps below and donate $10 to International Lyme and Associated Diseases Educational Fund (ILADEF), the IRS 501(c)(3) educational foundation of the International Lyme and Associated Diseases Society (ILADS). Prefer not to take the bite? That’s okay too! Donate $100 to ILADS instead. All donations accepted here:http://ilads.org/ilads_media/donate-iladef/
1. TAKE A BITE: Bite a lime and TAKE A PHOTO OR A SHORT VIDEO of the act (the funnier your sour-puss face the better!)
2. SHARE A FACT: State ONE BRIEF FACT ABOUT LYME DISEASE, such as the facts provided on www.lymediseasechallenge.org.
3. PASS IT ON: Keep the campaign going — CHALLENGE THREE OTHER PEOPLE – and tag them in your post. PLEASE PLEASE PLEASE CHALLENGE OTHERS!
Please be sure to use the hashtag #lymediseasechallenge. For more information, please visit www.lymediseasechallenge.org

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Cross your fingers, toes, and anything else that crosses! 

I’m really afraid to say this…i don’t want to jinx it…but I feel GOOD. For almost 2 weeks now! I’ve had only 1 bad day out of 12! 

When I say good, I mean I have energy, less pain that normal, and I just have this general sense of something BIG being different. Even when I had that one bad day (and it was really bad), when I was stuck in bed all day, I didn’t mind, I wasn’t upset, because I just knew that it would be temporary (and it WAS!) 

I have no idea what’s going on, but if you’ve got something to cross please cross it for me that this sticks around! I’m really enjoying living life like a normal person; I’m having fun spending time with my dear boyfriend and not being held back by feeling sick.  

Also, I’m having surgery on my heart in a couple of days (my 3rd heart surgery in 7 months!) If it works that will definitely contribute to my feeling good, so keep crossed for that too? Thanks! 

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It’s over.

So, I got divorced yesterday. Wearing pajamas and sitting at my kitchen table. Just like that my marriage was over.

I slept until around 2pm, and when I got up I checked the mail. There it was…

“Final dissolution of marriage”

Surprisingly, I didn’t cry, I wasn’t even upset. I was simply sad, and relieved at the same time. Part of me wonders what my ex will do as he reads his letter…I have a feeling he will not be quite so calm…

After 14 months of separation, 11 months of divorce proceedings, it is finally over.

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